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By physician referral or invitation only


To have a well phenotyped cohort of people with sickle cell disease in order to examine risk factors for end organ disease through the creation of a multi-site registry and to develop a repository for the long-term storage of patient samples (whole blood, peripheral blood, serum) along with corresponding demographic and clinical information to allow for clinical and laboratory correlations.

Age & Gender

  • 0 years ~ 0 years
  • Male, Female, Gender Inclusive

Contact the Team


Thank you for your interest, but this study is recruiting by invitation only.

Additional Study Information

Principal Investigator

Jane Little

Study Type

Clinical or Medical

Study Topics

Blood Conditions
Minority Health

IRB Number


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