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Stories of teenager activity participation

In this study, we want to learn more about the experiences and activities of high school-aged youth after a neurological event. This study will also help us to understand the perspectives of youth and a parent/caregiver through photos and stories.

Age & Gender

  • 14 years ~ 21 years
  • Male, Female, Gender Inclusive

Visit Availability

  • Standard business hours (M-F, 8-5)
  • Extended hours (M-F, early morning or evening)
  • Weekend hours, if needed
  • In-home visits available


North Carolina (Statewide)

What will be asked of you

This study looks at how high school-aged youth participate in their daily routines and activities. The researcher may spend between 3-6 months with each family. For this study, the researcher will join youth during activities at at least three different places (example: home, school, and in your community). The researcher may also complete two interviews with the teenager and two interviews with a parent/caregiver. One of the interviews may be a photo interview where participants take photos over the span of two weeks and then tell the researcher stories about the photos.


Up to $200

In-person visits:
Total length of participation:
2-6 months

Looking for Healthy Volunteers

Requirements for healthy volunteers are different than for those with a specific condition. If you are interested in becoming a healthy volunteer for this study, use the below categories to determine if you are able to participate.

Able to participate:

  • You are enrolled in high school, will be in high school for the 2023-2024 school year, or are a 2023 graduate from high school
  • You have a history of a neurological event (examples: cerebral palsy, spina bifida, brain injury, spinal cord injury) or other unexpected health event (example: COVID)
  • You live in North Carolina
  • You communicate in English using verbal language

Not eligible if:

  • None

Contact the Team

Visit Location

Contact & Visit Location

Primary Contact

Primary Visit Location

Your Home

Additional Study Information

Principal Investigator

Rachel Vaughn
Department of Health Sciences

Study Type

Behavioral or Social

Study Topics

Blood Conditions
Brain, Head, Nervous System
Cancer (Pediatric Cancers)
Child and Teen Health
Parents of Children
Physical Disability

IRB Number


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