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Registry for Autism, Fragile X Syndrome, and Intellectual and Developmental Disabilities

The Registries inform individuals with autism, fragile X and intellectual and developmental disabilities about research studies.

Age & Gender

  • 1 years ~ 99 years
  • Male, Female, Gender Inclusive


North Carolina (Statewide)

What will be asked of you

Provide information such as name, age, birthday, email, address and phone and basic information about your (or your child's) developmental condition. We will notify you by mail, phone and email if you may be a match for a study at UNC.

Total length of participation:
Members may stay enrolled as long as they wish.

Looking for Specific Volunteers

Able to participate:

  • autism spectrum disorder
  • or fragile x syndrome
  • or intellectual or developmental disorder

Not eligible if:

  • none

Contact the Team

Visit Location

100% Remote (online, phone, text)

Additional Study Information

Principal Investigator

Gabriel Dichter
Carolina Institute for Developmental Disabilities

Study Type

Behavioral or Social

Study Topics


IRB Number


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