Aim 1: Among key stakeholders in NC impacted by HIV molecular surveillance (HMS) activities, we aim to assess the ethical concerns surrounding the implementation of HMS and related pubic health services and research by: 1a) Characterizing stakeholders' awareness, experiences with, and sources of information AND 1b) Examining perceptions, including perceived risks and benefits and other ethical considerations, and the opportunities for enhancement of community engagement practices Aim 2: To develop a community-engaged partnership framework to promote effective communication and community participation regarding HMS, and related health services and research.
Our goal is to examine differences in 250 AL communities' preparedness for and response to COVID-19 across 7 states, and how preparedness and response varies by a) AL characteristics (e.g. provision of memory care for residents with ADRD, chain affiliation), b) medical and mental health care provision (e.g., on-site medical care, medical directorship, proportion of residents with the same provider), and c) relates to resident outbreaks.
The TIMELY impact evaluation is a tracking study to evaluate the extent to which patients with lupus from North Carolina who are under the care of TIMELY-trained providers (rheumatologists, primary care providers, nephrologists, dermatologists) or have connected with local Community Health Workers (CHWs) have increased intentions and willingness to participate in lupus clinical trials and referrals, enrollment, and retention in lupus clinical trials.
The purpose of this study is to understand how the COVID-19 pandemic has affected the patients, work and jobs of doctors, nurses, dentists, psychologists and other health care workers in community health centers, health departments and other practices that serve poor and at-risk people.
This study focuses on human's deviation from information saturation with their personal satisfying strategy, aka, individual information satiety. This helps us to understand how and why humans decide what is enough for particular tasks, and inform us with better design guidelines for information systems.
We will interview researchers whose work involves the science of gene editing or policy implications of human gene editing. We will also conduct observations at conferences and other public meetings. The interviews and observations will document researchers' perspectives on the scientific prospects for applying human gene editing to the prevention of disease, enhancement concerns that might be generated, and views on the appropriate governance of human genome editing research.
To collect data (mid and long-term) for certain FDA approved endovascular devices.
The purpose of this study is to learn how having specific help over a period of time (financial navigation) can help reduce your distress related to the cost of cancer. You will complete a survey to see if you have financial distress. If you have financial distress, you will then fill out a few more surveys and be asked more details about your current financial situation to determine what programs could be helpful for you. The surveys can be completed in person, by email, or over the phone. The navigator can help you complete the surveys if needed. After that, depending on your needs, you will have 1-6 appointments with the financial navigator over a period of 2 weeks -4 months. Risks to you are small due to the educational nature of this study. They may include mild emotional distress while talking about your cancer and financial experiences. Benefits
The purpose of this study is to ask our coalition members and patient action group members how engaged they feel in the ACHIEVE inititative. We are also asking clinic providers and staff how they feel about the guidelines we are asking them to implement as part of the ACHIEVE initiative. Finally, we are assessing the extent to which care teams demonstrate respectful care during interactions with patient actors.
To understand how people respond to ambiguity in interpersonal situations. We would like to understand how people make decisions to trust others in uncertain situations, especially with respect to interpersonal relationships and dynamics. The focus of this study is on workplace behavior and behavior in institutional contexts.