The purpose is to better understand the function of newly identified genes that when mutated cause the disease primary ciliary dyskinesia (PCD), or clinical disorders that share clinical features of PCD. PCD is a rare disease that is caused by defects in the structure or function of cilia that move mucus and inhaled foreign material, including bacteria and viruses, out of the airways. By understanding how the proteins encoded by these genes function and how this function is altered in disease, we may be able to improve the treatments available for PCD and other airway diseases.
The purpose of this study is to test the safety and effectiveness of DNTH103 for patients who have MMN (multifocal motor neuropathy)
To provide AMTAGVI per United States Prescribing Information (USPI) to patients.
The purpose of this study is to examine whether attitudes toward biracial people shift over the course of the 2024 U.S. Presidential Election.
This study is an in-depth, qualitative research study with a longitudinal design that will assess if and how post-traumatic growth and radical healing are experienced among Black/African American youth (ages 13-18) exposed to racial trauma who participate in a YPAR intervention. Our longitudinal qualitative design, with quantitative integrated only for qualitative comparison by group purposes, allows us to explore shared patterns and differences across youth-serving contexts without neglecting person-level factors (i.e., racial identity and racism-related stress) that may impact the experience of post-traumatic growth and radical healing among Black/African American youth exposed to racial trauma. Our approach is grounded in the involvement and perspectives of youth and adult supporters in our respective communities.
This study will investigate how mechanical properties of breast tissue, such as stiffness, viscosity, and anisotropy, are related to breast tumor malignancy and response to chemotherapy. The study uses ultrasound imaging to measure these mechanical properties non-invasively in human subjects.
This study is being conducted to create a better understanding of how military journalists cover issues such as military mental health and whether this coverage focuses on institutional or individual factors, how their audiences perceive their news stories, and what possible methods or techniques may be needed to make their coverage more effective.
With this study we want to collect data from new and established patients with inflammation of the cornea (keratitis). We want to create a registry that can give us information about this disease and define what factors are related to the process, diagnosis, and treatment of keratitis, to help improve the health of future patients with this condition.
We are interested in learning more about what concerns and challenges are being experienced by people with eating disorders during the COVID19 pandemic. We hope that answers to our survey questions will help provide information that can benefit people with eating disorders and the clinicians that provide treatment to them.
The goal of this project is to establish normative data for the Vocal Development Landmarks Assessment (VDLA), an online tool designed to obtain information about early vocalizations and babbling for children <21 months of age.