The purpose of this project is to create and distribute a survey with the intent to collect data about the amount and quality of training critical care physicians receive regarding brain death (i.e., death by neurologic criteria). We are doing because teaching physicians about brain death is not standardized and the subject is complex.
To assess the safety of nonconforming lisocabtagene maraleucel in patients
Children diagnosed with Fragile X syndrome and Down syndrome are at substantially increased risk for developing neuropsychiatric disorders including autism spectrum disorder (ASD) and attention-deficit hyperactivity disorder (ADHD). Despite a known genetic cause for each syndrome, substantial clinical variability exists among children with both syndromes, suggesting an important role for genetic background in shaping child outcomes. We will collect behavioral and genetic data from biological parents to model the relative role of genetic background in explaining behavioral, neurobiological, and clinical variability in young children with Fragile X and Down syndrome who have been followed with brain imaging and behavioral testing since infancy.
The purpose of the study is to understand parents' care coordination needs for raising a child with Down syndrome. This information will be used to develop an mHealth application to help meet those needs.
To learn more about multidrug-resistant bacteria in persons living with HIV.
There are two main aims of this study. The first aim is to describe rates of jaw pain symptoms in patients who have root canal treatment. The second aim is to test whether a short questionnaire can identify patients with jaw pain.
The purpose of this study is to establish that a Xenon MRI can detect brown fat and brown fat activity in greater detail in humans than a FDG-PET.
The study is designed to estimate the quality of life experienced by participants with controlled and non-controlled EoE because such estimates are useful in health economics research.
The purpose of this study is to understand how states can improve health information exchange for their Medicaid members.
The virus that causes COVID-19 disease infects many people, but only some get sick. We want to understand how COVID affects the immune system and what makes severe COVID infections different from other diseases that cause hospitalization and breathing problems. We collect samples of blood, sputum, urine, and stool from patients in the hospital to learn how COVID affects cells and molecules of the immune system.