To follow people with cystic fibrosis who have cultured a positive NTM bacteria.
The primary objective of PATIENCE is to develop a standardized approach to the treatment of NTM in CF patients with a diagnosis of NTM disease. The secondary objectives are to: - Evaluate the feasibility and tolerability of a standardized treatment protocol for NTM disease - Evaluate effectiveness of a standardized NTM disease treatment protocol to serve as baseline/reference estimates of endpoints in clinical care and future therapeutic trials - Support biomarker development for markers of NTM treatment response through banking of clinical specimens and NTM isolates linked with outcomes data - Characterize clinical features of patients achieving treatment success compared to those unresponsive to treatment
Does patient response to numbing of the skin prior to placement of a spinal or epidural for a cesarean delivery predict post cesarean pain?
Hurricanes and other extreme storms often cause damage in North Carolina. This study collects data from communities and households to understand the short and long term impacts of these events and how individuals, families, and communities respond to and recover from them. The data will help us assess the full costs of extreme events and what families need in their aftermath.
This study is an access and distribution protocol for unlicensed cryopreserved cord blood units (CBUs) in pediatric and adult patients with hematologic malignancies and other indications. This protocol will allow access to cord blood units that are unlicensed.
The main purpose of this study is to determine how much MRTX849 can safely be administered to people. This will include looking at what side effects occur and how often they occur.
I am providing the first description of a language related to Italian from the south of Italy. This language is in danger of disappearing.
Collect various specimens (spit, sputum, sweat, blood, etc) to bank for research purposes.
The SELIGO study assesses perceptions of HIV treatment - including long acting injectable antiretroviral therapy (LAI ART) - among people living with HIV infection (PLWH) and HIV healthcare providers (HCPs) to develop strategies and tools to facilitate shared decision-making by patients and provider considering HIV therapy options.
This study trains health care providers in a children's asthma clinic to talk to families about concerns about the financial cost of asthma care. We will examine whether training providers increases the number of cost conversations and families' satisfaction with care.