To develop novel PROs for evaluating QoL among patients after IPAA, including those with acute pouchitis and chronic pouch-related conditions.

To follow people with cystic fibrosis who have cultured a positive NTM bacteria.

The primary objective of PATIENCE is to develop a standardized approach to the treatment of NTM in CF patients with a diagnosis of NTM disease. The secondary objectives are to: - Evaluate the feasibility and tolerability of a standardized treatment protocol for NTM disease - Evaluate effectiveness of a standardized NTM disease treatment protocol to serve as baseline/reference estimates of endpoints in clinical care and future therapeutic trials - Support biomarker development for markers of NTM treatment response through banking of clinical specimens and NTM isolates linked with outcomes data - Characterize clinical features of patients achieving treatment success compared to those unresponsive to treatment

Does patient response to numbing of the skin prior to placement of a spinal or epidural for a cesarean delivery predict post cesarean pain?

Hurricanes and other extreme storms often cause damage in North Carolina. This study collects data from communities and households to understand the short and long term impacts of these events and how individuals, families, and communities respond to and recover from them. The data will help us assess the full costs of extreme events and what families need in their aftermath.

This study is an access and distribution protocol for unlicensed cryopreserved cord blood units (CBUs) in pediatric and adult patients with hematologic malignancies and other indications. This protocol will allow access to cord blood units that are unlicensed.

This study will collect information about children who have rare types of lung disease to help us understand how better to diagnose and treat these patients. Information will be collected from participants' doctors about how different aspects of their disease and treatment. This will be compared to information from other such patients from other hospitals around the United States. By gathering information on many such patients, we hope to develop best practices for such patients. These may lead to new research studies, which we can invite participants in this study to consider as well.

The SELIGO study assesses perceptions of HIV treatment - including long acting injectable antiretroviral therapy (LAI ART) - among people living with HIV infection (PLWH) and HIV healthcare providers (HCPs) to develop strategies and tools to facilitate shared decision-making by patients and provider considering HIV therapy options.

(1) To translate a remote developmental assessment into Spanish with feedback from the Spanish-speaking community (2) To try out the assessment with Latinx infants who are showing risk signs of a developmental disability. After completing the assessment, we will interview families about their experiences. We hope that this information will help us improve remote assessments for Latinx families to better match their culture and language.

The primary purpose of this work is to engage a broad group of stakeholders to implement a patient-centered approach to the de-adoption of self-monitored blood glucose among non-insulin-treated patients with Type two Diabetes Mellitus. We will evaluate the effectiveness of Rethink the Strip finalize and package it for nationwide dissemination.