The purpose of this study is to understand stakeholders' perspectives on engagement in lupus research as participants on a lupus patient stakeholder advisory board (SAB). This study assesses SAB engagement activities, stakeholders' perspectives on engagement in lupus research, and describe potential impacts of the SAB on research projects. SAB members will provide input on a variety of lupus research studies designed at UNC. Our aim is to assess SAB participants' perspectives on engagement with lupus research and perceptions (e.g., satisfaction, trust) of their role on the SAB providing input on lupus research, including topics identified as priorities for advancing lupus research and care outcomes. With this research, we aim to increase understanding of approaches and opportunities to effectively engage patient stakeholders in lupus research. This study will also explore stakeholders' perceptions of social support, in particular any sense of community or satisfaction derived from involvement in the lupus SAB.
The goal of this project is to prototype and conduct usability testing on the "reserve a study room" function of UNC library website.
A community-based team, composed of Donna Carrington, Executive Director of Community Empowerment Fund (CEF), Danielle Spurlock, PhD, Assistant Professor, UNC Department of City and Regional Planning, and Allison De Marco, MSW PhD, Research Scientist, UNC Frank Porter Graham Child Development Institute and School of Social Work, are leading a Robert Wood Johnson Foundation (RWJF)-funded research project in Orange and Durham Counties, entitled, "Overcoming Structural Racism in Housing Stability and Wealth-building: Laying the Foundation for Community Health and Well Being." We'll be examining how CEF's services in Chapel Hill, Carrboro, and Durham are related to housing stability, the short-term and longer-term effects of housing stability on financial, social, physical, and psychological well-being, and the disparate impacts of climate change. As part of this work, we are interested in understanding the local policy and practice context, via a series of community-based listening sessions.
The purpose of this study is to develop a natural language processing (NLP)-based software tool to identify information related to rigor and transparency from RCT reports. These tools will assist stakeholders of clinical research in maintaining high reporting standards, synthesizing information on methodological quality, and fostering open science practices.
We are determining whether upper extremity function improves after surgery for patients presenting with upper extremity lymphedema.
Hypothesis: The development of patient-focused tools and care processes will enable a transition from predominantly office-based CF care to a more convenient, co-produced model. The increased utilization of remote care will be associated with improved adherence to disease monitoring and complication screening guidelines and will increase patient satisfaction. Specific Aims: 1. Customize a patient-facing smartphone application (Nudge) designed to "coach" each patient toward a co-produced goal of convenient and effective health monitoring within the context of enhanced remote care. 2. Develop care processes that facilitate monitoring of respiratory status at home, using home spirometry and remote sputum collection, that include education, electronic reminders, and specimen collection/shipping supplies 3. Implement care processes that allow convenient access to necessary screening procedures, using the Nudge application to provide well-timed electronic reminders and track performance of screening tests.
To learn if one kind of treatment approach, either (1) endoscopic surveillance or (2) endoscopic eradication therapy, is better, the same, or worse for treating patients with Barrett's esophagus and low-grade dysplasia.
To evaluate hospital pharmacy managers' experiences with modular and stick-built cleanrooms
The purpose of this project is to gather information from different group to adapt a community-based treatment intervention for community-dwelling individuals with psychosis in Malawi. In this study, we will interview patients, caregivers, community leaders, traditional healers, and clinicians to better tailor this treatment approach to address the needs of this population
We would like to help patients identify what is important to them, i.e., their values, and support communicating that to their caregivers and healthcare providers. We are trying to create a tool that will make it easier to share what is most important to patients with metastatic breast cancer and their caregivers, with the patient's oncology healthcare provider.