The purpose of the study is to determine how the Cancer Prevention and Control Research Network (CPCRN) researchers and their community partners are operationalizing the nine health equity Principles adopted by the network. The examples, acquired through in-depth interviews, will be used to develop a technical assistance toolkit for CPCRN and the general research community.
We would like to help patients identify what is important to them, i.e., their values, and support communicating that to their caregivers and healthcare providers. We are trying to create a tool that will make it easier to share what is most important to patients with metastatic breast cancer and their caregivers, with the patient's oncology healthcare provider.
Black men are diagnosed with prostate cancer more often than white men, and more commonly die from this disease. Care for advanced prostate cancer has improved a great deal over the past ten years, but these differences have continued. In order to improve equity in cancer care, we want to determine who is not getting the highest quality of care and whether race is associated with differences in care. Our study will ask Black and White men about their experiences with cancer care - if they trusted their doctors, how well their doctors communicated with them, and if they were satisfied with the care they received. We will ask about the challenges they experienced in receiving care, and what might have helped them get better care. We will use these results to design a better way to deliver care.
Research with blood and cells (generally called specimens) can help researchers understand how the human body works. Research can also answer other questions by using specimens. Researchers may develop new tests to find diseases, or new ways to treat diseases. In the future, research may help to develop new products, such as drugs. You are being asked for permission to use your biospecimens and medical records for this study. Using your biospecimens, researchers may be able to detect CAR-T cells in your body after you receive the CAR-T treatment. The purpose of this study is to validate the detection method of CAR-T cells in the blood to advance CAR-T therapy development.
Cancer caregivers experience high levels of stress related to the caregiving role, particularly for rural caregivers. The purpose of this study is to assess the acceptability and preliminary effect of enCompass Carolina, a social support program for caregivers of rural-dwelling patients with cancer.
This study seeks to promote clinical trial engagement in African Americans with pancreatic cancer. The first group of people will be interviewed by phone to discuss clinical trials. This information will be used to create a new mobile health app/website. In the second group, half of the participants will receive the new app and half will not. They will both be asked to complete questionnaires after their upcoming doctor visits.
The expected outcome of this proposal is a novel care pathway delivered by pharmacists to improve side effects during oral chemotherapy for patients, a known barrier to adherence, and ultimately to prevent progression and early mortality. Our long-term goal for P3OC is to develop and test new dashboard features to optimize pharmacy care, meet future needs for value-based payment models, and improve patient outcomes.
Purpose: To develop, assess, and refine a brief electronic patient-reported outcome (ePRO) tool that can be completed weekly by patients with newly diagnosed breast and colorectal cancer to self-report progress from diagnosis to treatment initiation.
The purpose of this project is to identify and target barriers faced by rural endometrial cancer patients in order to develop a patient navigation intervention. Rural residents with endometrial cancer, the most prevalent gynecologic cancer in the US, have higher odds of mortality than urban endometrial cancer patients. As the number of new endometrial cancer cases is expected to increase 50% by 2030, this urban-rural disparity is expected to continue widening.
The purpose of this project is to identify and target barriers faced by rural endometrial cancer patients in order to develop a patient navigation intervention. Rural residents with endometrial cancer, the the most prevalent gynecologic cancer in the US, have higher odds of mortality than urban endometrial cancer patients. As the number of new endometrial cancer cases is expected to increase 50% by 2030, this urban-rural disparity is expected to continue widening.