To collect quantitative data to: -Primarily gain a better understanding of patients' attitudes and preferences regarding end-of-life care management if they were to develop a high-risk skin cancer. To be more specific, we hope to gain a better understanding of how patients weigh their risk of developing skin cancer while taking immunosuppressants versus the risk of transplant rejection should they choose to stop or lower their immunosuppressants. -Determine how far these kidney transplant recipients travel to obtain skin-related care -Determine how frequently kidney transplant recipients obtain skin exams -Determine patients' baseline knowledge regarding risk of skin cancer while taking immunosuppressants, which are medicines that lowers immune systems -Determine the quality of life of individuals with skin cancer who are kidney transplant recipients
we will be conducting 60-minute interviews with young adults to hear about social connections (in person and online) and cancer support on social media
We are building an automatic pathology report summarization system. We would like to include human judgement from professionals to help us understand and explain the results, and improve the system. In the evaluation, we will schedule a 30-min meeting do go through the details and for the professional to sign a consent form. The professional will expect to receive twenty documents including ten raw reports and ten summaries of these reports. They will be sent in a random order with no correspondence indicated. For each of the document, you will be asked to answer ten questions. We will evaluate the quality of the summaries based on the time she/he spent on reading the report, answering the questions, and the accuracy of the questions.
Black women have worse breast cancer outcomes than White women. Physical activity can help cancer survivors live longer, feel better, and stay healthier. However, there aren't many health promotion programs to help Black women diagnosed with breast cancer become physically active, feel better, and stay healthy. The purpose of this study is to understand what kind of health promotion programs Black women diagnosed with breast cancer prefer and how different things affect their health and lifestyle. The insights gained from this study will help develop a customized health promotion program for Black women diagnosed with breast cancer.
The purpose of this study is to determine if memantine, a medication commonly used for dementia, may lessen cognitive changes that may occur during treatment for breast cancer.
This study is recruiting Spanish-speaking Latina breast cancer survivors to interview them about factors that influenced their decision about whether or not to have breast reconstruction surgery. In addition, the participants will provide feedback on a website decision tool that was created to increase informed decision making on this topic.
To understand the relationship between biomarkers (found in the blood) and health outcomes among adults diagnosed with hepatocellular carcinoma who are receiving a liver transplant.
Asking children (aged 12-17.9) to taste samples of healthy meals and provide feedback about taste, texture, and ideas for improvement
The expected outcome of this proposal is a novel care pathway delivered by pharmacists to improve side effects during oral chemotherapy for patients, a known barrier to adherence, and ultimately to prevent progression and early mortality. Our long-term goal for P3OC is to develop and test new dashboard features to optimize pharmacy care and meet future needs for value-based payment models
The purpose of this study is to validate a new voice-enabled tablet to ensure it is an accurate and acceptable way to administer PROs questionnaires in Malawi. This voice-enabled tablet was developed specifically for patient populations who are unable to comfortably read and write, so that they can have equal access to participating in direct self-reporting their own PROs Questionaries without needing and interviewer to assist them. Once validated in the first 50 participants, then we will continue to enroll 500 participants who will take the PROMIS-25 and/or PRO-CTCAE Questionnaires at various time points throughout their treatment. This will allow you to directly self-complete the PRO surveys and give you a voice so that your struggles, quality of life, and symptoms can be more accurately and comprehensively communicated to the medical care team. We hope that through administering these PROs questionnaires, it will also improve the overall care, management of