This is a research study to develop new ways to measure the well-being of people living with Alzheimer's disease and related dementias.
The purpose of the study is to provide a detailed view of the impact of MMN and MMN treatment on patients in the real world. This protocol aims to collect data from participants with MMN to characterize the disease's course and management and the humanistic and economic burden on patients
The primary objective of PATIENCE is to develop a standardized approach to the treatment of NTM in CF patients with a diagnosis of NTM disease. The secondary objectives are to: - Evaluate the feasibility and tolerability of a standardized treatment protocol for NTM disease - Evaluate effectiveness of a standardized NTM disease treatment protocol to serve as baseline/reference estimates of endpoints in clinical care and future therapeutic trials - Support biomarker development for markers of NTM treatment response through banking of clinical specimens and NTM isolates linked with outcomes data - Characterize clinical features of patients achieving treatment success compared to those unresponsive to treatment
Mental health care for adolescents at-risk to suicide is often provided in school settings and school professionals play a role in suicide prevention by fostering a sense of connectedness to schools. The practice of social distancing to reduce the spread of COVID-19 has disrupted these school-based mental health services and left adolescents with few opportunities to connect with peers or adults outside their home making them vulnerable to suicide. Despite these challenges, this time period affords an opportunity to learn how to mitigate the impacts of this disruption, providing insights that extend to school closure related to inclement weather, natural disasters, and extended leaves due to mental health crises (e.g., hospitalization) faced by adolescents with suicidal urges. The purpose of this study is to explore the experiences of parents and adolescents with suicidal behaviors receiving school-based mental health services and supports during COVID-19. This study aims to provide
To follow people with cystic fibrosis who have cultured a positive NTM bacteria.
The purpose of this research study is to survey what is currently being practiced among current third/fourth year dental students at the UNC Adams School of Dentistry with regards to treatment of dental infections.
To understand if advanced communication training for 4th year medical students improves comfort with having difficult conversations as resident physicians.
To develop novel PROs for evaluating QoL among patients after IPAA, including those with acute pouchitis and chronic pouch-related conditions.
To understand current pneumococcal vaccination practices and vaccination barriers at rural community pharmacies in the southeast.
The purpose of this study is to adapt a measure of family acceptance and rejection of gender identity.