This study will collect information about children who have rare types of lung disease to help us understand how better to diagnose and treat these patients. Information will be collected from participants' doctors about how different aspects of their disease and treatment. This will be compared to information from other such patients from other hospitals around the United States. By gathering information on many such patients, we hope to develop best practices for such patients. These may lead to new research studies, which we can invite participants in this study to consider as well.
To test the effect of automated RBC exchange transfusion and standard of care compared with standard of care on the number of episodes of clinical worsening of sickle cell disease (SCD)requiring acute health care encounters (non-elective infusion center/ER/Hospital visits) or resulting in death over 12 months in high risk adult SCD patients.
The purpose of this registry is to evaluate the safety and performance of a market approved surgical device. To achieve the study's purpose, our team is monitoring the health of patients during and after procedures that involve the use of this surgical device.
About two in five people who are undergoing a kidney biopsy have diabetes. Diabetes is a common finding in people with kidney disease, but little is known about the specific ways in which diabetes affects kidney function. The purpose of this study is to gather two groups of patients with diabetes who undergo a kidney biopsy in order to create a source of information with genetic, blood, and urine samples available, by which researchers can study how diabetes affects kidney function.
This study will compare 3 different ways to educate patients with advanced chronic kidney disease about hemodialysis vascular access.
The purpose of this study is to compare clinical outcomes and health-related quality of life between an individualized hemodialysis prescription and conventional hemodialysis prescription in individuals requiring chronic hemodialysis who still have residual kidney function.
The primary objective of this study is to assess the efficacy of rifaximin SSD-40IR versus placebo to delay the occurrence of hepatic encephalopathy (HE)-related hospitalization.
The purpose of this research study is to try and teach a computer program to assess how a dialysis vascular access fistula is maturing, when it could be ready to put needles in, or when it needs to be fixed to allow it to mature better; based on the electronic stethoscope recordings.
Comparing effects of a drug called ziltivekimab versus a placebo on heart disease and chronic kidney disease.
This study is intended to understand the burdens of the liver transplant process on patients with liver disease and on their caregivers. We will be determining burdens across the following areas: financial, work productivity, quality of life, and caregiver stress. We hope to better understand patient experiences during this process to optimize their care in the future.