This study aims to establish a research network and registry for persons with Dementia with Lewy Bodies (DLB) in order to characterize the disease and aid in future clinical trials.
At each visit you and your study partner will fill out questionnaires about your condition. You will also undergo a blood draw, neurological assessment, and cognitive testing. At each annual visit you will undergo a lumbar puncture. You will have brain imaging including MRI and DaTscan at the baseline and 24 month visits. You must also agree to donate your brain to research if you were to pass away during the course of the study.
$50-$250 per visit / up to total $1,350 for 7 visits, Costs of all study procedures are covered by the sponsor. Depending on the distance you live from the research site, you may be eligible to have certain parts of your travel expenses reimbursed.
Clinical or Medical
Brain, Head, Nervous System
Mental and Emotional Health