We have created a workbook about Lynch Syndrome, a genetic condition that means an individual is at high risk of developing certain cancers, and family testing. It is important that patients with Lynch Syndrome tell their family members about their condition so their family members understand their risks and can be tested for Lynch Syndrome too. We are testing our workbook with a small group of patients with Lynch Syndrome to understand if the workbook is helpful in managing their condition and talking to family members.
COM_RESEARCHSTUDIES_DETAIL_HEADER_BASIC_CONTACT_4
United States (Nationwide)
Megan Roberts
UNC Eshelman School of Pharmacy-Division of Pharmaceutical Outcomes and Policy
Behavioral or Social
Interventional
Behavior
Cancer (Colorectal, Uterine (endometrial))
Genetics and Genetic Disorders
20-3115