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Not currently enrolling

Our HHT Registry

The purpose of this study is to collect a bank of information about people living with HHT to better understand HHT, the symptoms and complications it causes and how the disease impacts people's lives.

Age & Gender

  • 18 years ~ 99 years
  • Male, Female, Gender Inclusive

Contact the Team

Location

Thank you for your interest, but this study is not currently enrolling.

United States (Nationwide)

Additional Study Information

Principal Investigator

Raj Kasthuri
Medicine-Hematology

Study Type

Clinical or Medical
Registry

Study Topics

Rare Diseases

IRB Number

21-2105

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