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Parkinson's Disease Genetic Registry

This is a genetic registry study aimed at developing a central location to store Parkinson's Disease genetic data for future research use.

Age & Gender

18 years ~ 99 years
Male, Female, Gender Inclusive

Visit Availability

Standard business hours (M-F, 8-5)

Location

North Carolina (Statewide)

What will be asked of you

This study will consist of 2 visits. During the first visit, you will meet with a study team member to provide a blood or saliva sample that will be sent to a genetic testing lab. During the second visit, you will undergo genetic counseling to receive your results.

In-person visits:
1-2

Phone or online visits:
0-1

Total length of participation:
1-2.5 hours

Looking for Specific Volunteers

Able to participate:

You meet the criteria for probable diagnosis of Parkinson's Disease
You are at least 18 years old and willing to undergo genetic testing
You are able to give full informed consent
You can perform all necessary study activities

Not eligible if:

You are diagnosed with an atypical parkinsonian disorder
You have received a blood transfusion in the past 3 months
You have active hematologic malignancies, such as leukemia or lymphoma
You have had a bone marrow transplant in the past 5 years

Contact the Team

Visit Location

Contact & Visit Location

Primary Contact

Primary Visit Location

Adult Neurology Outpatient Clinic
UNC Meadowmont
300 Meadowmont Village Cir, Chapel Hill, NC 27517, USA

Additional Study Information

Principal Investigator

Claudia Testa
Neurology

Study Type

Clinical or Medical
Registry

Study Topics

Brain, Head, Nervous System
Genetics and Genetic Disorders
Movement

IRB Number

22-1214

ClinicalTrials.gov

NCT04994015

Copyright © 2013-2022 The NC TraCS Institute, the integrated home of the NIH Clinical and Translational Science Awards (CTSA) Program at UNC-CH. This website is made possible by CTSA Grant UL1TR002489 and the National Center for Advancing Translational Sciences.

Helpful Links

Questions?

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