This purpose of this study is to learn the best way to build advocacy skills for parents/caregivers of transition age youth with IDD. The goal is to improve parent and youth health and emotional well-being. Parents will attend a group with other parents; the groups will meet 4 times, once a week for 1 hour. The research team will collect 4 surveys from parents, 4 brief surveys from youth if the parent feels they are able to provide information, 4 audio-recordings of parent-provider conversations, and video-recordings of group sessions. Parents and youth will be compensated for their time.
Thank you for your interest, but this study is not currently enrolling.
North Carolina (Statewide)
Kathleen Thomas
UNC Eshelman School of Pharmacy-Division of Pharmaceutical Outcomes and Policy
Behavioral or Social
Interventional
Behavior
Child and Teen Health
Developmental
Mental and Emotional Health
Parents of Children
23-0739