Open

Alpha-1 Antitrypsin TDN

The goal of this study is to create a list of people with Alpha-1 Antitrypsin deficiency who want to be involved in future studies.

Age & Gender

18 years ~ 99 years
Male, Female, Gender Inclusive

Visit Availability

Standard business hours (M-F, 8-5)
Visits can be combined with regular clinical appointments

Location

North Carolina (Statewide)

What will be asked of you

At the first visit you would complete informed consent, check to see if you are already in the registry, and sign a medical release form. At follow up visits we will ask for any changes in your medical condition.

Incentives

$50 for initial visit and $50 for each follow up visit completed

In-person visits:
1

Phone or online visits:
11

Total length of participation:
3 years

Looking for Specific Volunteers

Able to participate:

Alpha-1 Antitrypsin Deficiency

Not eligible if:

You don't want to be involved in the registry

Contact the Team

Visit Location

Contact & Visit Location

Primary Contact

Primary Visit Location

Clinical Research Unit
UNC Eastowne Medical Office Building
100 Eastowne Dr, Chapel Hill, NC 27514, USA

Additional Study Information

Principal Investigator

Brad Drummond
Medicine-Pulmonary

Study Type

Clinical or Medical
Registry

Study Topics

Lungs and Breathing
Rare Diseases

IRB Number

23-2544

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