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By physician referral or invitation only

Health Equity in Newborn Screening

The research seek to understand if there are barriers to obtaining confirmatory tests once a child is identified by newborn screening as being at risk for cystic fibrosis.

Age & Gender

  • 18 years ~ 99 years
  • Male, Female, Gender Inclusive

Contact the Team

Location

Thank you for your interest, but this study is recruiting by invitation only.

Georgia, New Jersey, New York, North Carolina (Statewide), Pennsylvania, Wisconsin

Additional Study Information

Principal Investigator

Jennifer Goralski
Pediatrics - Pulmonology

Study Type

Clinical or Medical
Observational

Study Topics

Child and Teen Health
Lungs and Breathing
Minority Health
Opinions and Perceptions
Rare Diseases

IRB Number

24-1066

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