This is a research study to gather the opinions of individuals with Rett syndrome concerning their communication with others, reading, and writing. The purpose of this study is to gather information that might help future therapy for children with Rett syndrome. Participants will be interviewed and observed in their own environments over the course of about one month.
Thank you for your interest, but this study is recruiting by invitation only.
United States (Nationwide)
Andrea Etkie
Department of Health Sciences - Center for Literacy and Disability Studies
Behavioral or Social
Observational
Child and Teen Health
Developmental
Opinions and Perceptions
Rare Diseases
Language and Speech
24-1042