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By physician referral or invitation only

Self-Perceptions of Individuals with Rett Syndrome

This is a research study to gather the opinions of individuals with Rett syndrome concerning their communication with others, reading, and writing. The purpose of this study is to gather information that might help future therapy for children with Rett syndrome. Participants will be interviewed and observed in their own environments over the course of about one month.

Age & Gender

  • 7 years ~ 22 years
  • Male, Female, Gender Inclusive

Contact the Team

Location

Thank you for your interest, but this study is recruiting by invitation only.

United States (Nationwide)

Additional Study Information

Principal Investigator

Andrea Etkie
Department of Health Sciences - Center for Literacy and Disability Studies

Study Type

Behavioral or Social
Observational

Study Topics

Child and Teen Health
Developmental
Opinions and Perceptions
Rare Diseases
Language and Speech

IRB Number

24-1042

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