Age-Based- Genomic Screening Caregiver Interviews

The University of North Carolina Age-Based Genomic Screening program is an innovative paradigm that aims to provide targeted and highly actionable genetic information to parents via their child's routine wellness visits. The final stage of the program involves a pilot study that will expand pediatric genetic screening in well-child care across the states. In preparation for this final stage, we will conduct interviews with parents or caregiver of children in North Carolina to inform an implementation plan, educational and training materials, and evaluation plan for the pilot study. The interviews will consist of questions aimed at assessing barriers and facilitators to the implementation of ABGS, including parents' and children's healthcare and genetic screening experiences (such as blood and saliva collection), perceptions and interest in the ABGS program, expectations and experiences with healthcare providers, and the information needed for participation decisions.