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USCLC National Cutaneous Lymphoma Registry

To establish a long term, secure and easily accessible electronic online registry platform for the collection of data on patients with cutaneous lymphoma in the United States and collaborating partner nations

Age & Gender

  • 18 years ~ 99 years
  • Male, Female, Gender Inclusive

Visit Availability

  • Standard business hours (M-F, 8-5)
  • Visits can be combined with regular clinical appointments

Location

United States (Nationwide)

What will be asked of you

Your study doctor will review the informed consent form with you and if you decide to participate in the study. You will asked to fill out questionnaires related to your perspective of your cancer or treatment

Total length of participation:
60 months

Looking for Specific Volunteers

Able to participate:

  • Potential subjects who meet clinical and histologic criteria for a subtype of cutaneous lymphoma
  • Subjects will include all ages older than 18, races, and sexes who meet the diagnostic criteria
  • Subjects with cutaneous lymphoma whose diagnosis was made within the past 6 months.
  • Subject with cutaneous lymphoma that meets the study criteria, including those currently being followed and diagnosed more than 6 months before being consented

Not eligible if:

  • Incarcerated individuals will not be eligible.

Contact the Team

Visit Location

Contact & Visit Location

Primary Contact

Primary Visit Location

Lineberger Comprehensive Cancer Center
NC Cancer Hospital (Basnight)
UNC Hospitals / UNC Medical Center
101 Manning Dr, Chapel Hill, NC 27514, USA

Additional Study Information

Principal Investigator

Anne Beaven
Medicine- Oncology

Study Type

Clinical or Medical
Registry

Study Topics

Cancer (Lymphoma)

IRB Number

17-3193

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