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Supporting Just-in-Time Consent for Prenatal Screening in Diverse Populations

Aim 1a: The goal of the JITC model is to provide sufficient information about fetal genetic screening, elicit sufficient information about a patient's relevant values, and assist the patient in reconciling these two to make a decision specifically about the screen. In order to find a balance between too little and too much information via values engagement, particularly for historically underserved patients, we will conduct qualitative research with patients and other members of underserved communities. In addition, we will address any barriers to feasibility by interviewing and integrating insights from healthcare providers and clinic staff. Aim 1b: The JITC model will be tested via an interactive, mobile-compatible tool. Mobile-based patient interaction tools have been successfully tested and implemented in a variety of contexts, including for patient education and consent. Data gathered and analyzed in Aim 1a will be integrated into an interactive, mobile-compatible tool to provide JITC. We recognize that there

Age & Gender

  • 18 years ~ 100 years
  • Male, Female, Gender Inclusive

Location

North Carolina (Statewide)

What will be asked of you

Just to provide their thoughts and opinions about testing during their pregnancy

Incentives

To be determined

Total length of participation:
One remote visit (30-35 minutes)

Looking for Specific Volunteers

Able to participate:

  • Pregnancy

Not eligible if:

  • Must have been pregnant in the last 6 months

Contact the Team

Visit Location

  •  Amber Rose Ivins

100% Remote (online, phone, text)

Additional Study Information

Principal Investigator

Asha Talati
Center for Womens Health Research

Study Type

Behavioral or Social
Observational

Study Topics

Women's Health

IRB Number

24-3140

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