MPS II Clinical Guidelines Delphi Study

After conducting a thorough literature review to capture all current areas of care and treatment for MPS II patients, a brief overview of the literature was presented to a group of MPS experts, including the principal investigator and co-investigators. From this overview, the Delphi statements were created. The Delphi statements were then put into Qualtrics to create a survey. The survey will be sent to practitioners who care for and treat MPS II patients, including MDs, PhDs, APPs, or those holding an advanced degree in a relevant field. Participants will be asked to answer a few demographic questions to see if they qualify for the survey. From the survey, we will determine a level of agreement and publish the results in a medical journal