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CureGN (Cure Glomerulonephropathy)

CureGN is a large multi-center, long-term observational study of patients with Nephrotic Syndrome and other glomerular diseases, which aims to improve the diagnosis, treatment and outcomes of patients affected by these diseases. This study will follow 2,400 patients with Focal Segmental Glomerulosclerosis (FSGS), Minimal Change Disease (MCD), membranous nephropathy (MN), or IgA Nephropathy/Henoch Schonlein Purpura.

Age & Gender

0 years ~ 99 years
Male, Female, Gender Inclusive

Visit Availability

Standard business hours (M-F, 8-5)
Visits can be combined with regular clinical appointments

Location

North Carolina (Statewide)

What will be asked of you

At each in-person study visit, you will: fill out questionnaires, provide a blood sample, provide a urine sample. provide information on your medical history. At each remote visit you will fill out a questionnaire and an answer questions about your health status.

Incentives

$100 for each in-person visit/$50 for remote visit, Parking passes for on-site parking

In-person visits:
In-person visits once a year

Phone or online visits:
1-2 remote visits per year

Total length of participation:
5 years or longer

Looking for Specific Volunteers

Able to participate:

Kidney biopsy in the last 5 years
Diagnosis of nephrotic syndrome from biopsy
Willingness to provide blood and urine samples once a year
Willingness to be contacted by phone/email every 4 months

Not eligible if:

Diabetes at the time of kidney biopsy
Currently receiving dialysis
Kidney transplant recipient
Active cancer at time of kidney biopsy
HIV, HepB, HepC at the time of kidney biopsy

Contact the Team

Visit Location

Contact & Visit Location

Primary Contact

Visit Study Website

Primary Visit Location

Clinical and Translational Research Center (CTRC)
Burnett-Womack Building (UNC-Chapel Hill)
160 Dental Cir, Chapel Hill, NC 27514, USA

Secondary Visit Location

UNC Ambulatory Care Center (ACC) (UNC-Chapel Hill)
102 Mason Farm Rd, Chapel Hill, NC 27514, USA

Additional Study Information

Principal Investigator

Vimal Derebail
UNC Kidney Center

Study Type

Clinical or Medical
Registry

Study Topics

Kidneys and Liver
Rare Diseases

IRB Number

20-0564

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Questions?

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