The purpose of Project Open is to improve augmentative and alternative communication (AAC). The current study will focus on in-person interactions with AAC. It will focus on adults with ALS, cerebral palsy, and intellectual and developmental disabilities. We will video participants using AAC in everyday settings. We will video participants using AAC in planned ways. We will code the videos. We will look for problems that occur. We will look for the ways that problems are avoided. We will look for the ways that problems are repaired. The results will help us develop new AAC technology.
In this study, we aim to assess patient, their partner, and provider understanding of a diagnosis of polycystic ovary syndrome (PCOS). An electronic survey investigating respondent's knowledge of the key clinical features of PCOS will be distributed to patients with PCOS and their partners, as well as to attending and resident physicians from various specialties and medical students. We believe that this study will highlight areas of clinical confusion to patients and areas where providers can improve upon counseling and patient education regarding features of the disease. We also believe that this study may highlight disparities in knowledge and understanding of key clinical features of PCOS among various providers, potentially highlighting an opportunity for improved training and education among physicians at various levels of training.
Research has shown that effective use of reading strategies contributes to reading comprehension. Thus far, most studies on reading strategy use have been conducted with second language (L2) readers of alphabetic languages such as English. There has been scant research on reading strategy use of Chinese as a second language (CSL) learners. Among the limited studies examining reading strategies employed by CSL learners, the majority were focused on advanced learner's reading strategies, and less attention has been devoted to intermediate-level learners. Furthermore, although a small number of studies investigating intermediate-level CLS learners' reading strategy use had both non-heritage and heritage participants, no comparison between the two groups was made. Given the vast differences of the learning profiles of heritage and non-heritage CSL students, it is possible that the reading strategies adopted by the two groups and the learning outcomes could be quite different. This study addresses this gap in literature.
This clinical registry is an observational study to collect prospective and retrospective data on subject health, wounds and wound care procedures from medical centers, including skilled nursing facilities, hospitals, outpatient clinics, Home Health and any other medical environment where wounds are treated.
This project examines the impact of Medicaid expansion in two states (RI and KY) on opioid overdose deaths (OOD), suicides, and homicides deaths among formerly incarcerated persons (FIPs) using a comparison state that has not expanded Medicaid (North Carolina). It will also detail state-specific models from Kentucky (KY) and Rhode Island (RI) for expanding Medicaid. The hypothesized benefits of Medicaid expansion include increased access to substance abuse and mental health services and increased opportunities for legal employment.
To identify treatment goals and factors that affect treatment selection for older patients with advanced melanoma through semi-structured interviews with patients and treating physicians.
Mental health care for adolescents at-risk to suicide is often provided in school settings and school professionals play a role in suicide prevention by fostering a sense of connectedness to schools. The practice of social distancing to reduce the spread of COVID-19 has disrupted these school-based mental health services and left adolescents with few opportunities to connect with peers or adults outside their home making them vulnerable to suicide. Despite these challenges, this time period affords an opportunity to learn how to mitigate the impacts of this disruption, providing insights that extend to school closure related to inclement weather, natural disasters, and extended leaves due to mental health crises (e.g., hospitalization) faced by adolescents with suicidal urges. The purpose of this study is to explore the experiences of parents and adolescents with suicidal behaviors receiving school-based mental health services and supports during COVID-19. This study aims to provide
We have created a workbook about Lynch Syndrome, a genetic condition that means an individual is at high risk of developing certain cancers, and family testing. It is important that patients with Lynch Syndrome tell their family members about their condition so their family members understand their risks and can be tested for Lynch Syndrome too. We are testing our workbook with a small group of patients with Lynch Syndrome to understand if the workbook is helpful in managing their condition and talking to family members.
The purpose of this research study is to learn about how family advocates/specialists/support workers perceive the families they work with and how they support their partnerships with diverse families.
The goal of this study is to learn what voters value in the congressional candidates.