Collect various specimens (spit, sputum, sweat, blood, etc) to bank for research purposes.
This study will collect information about children who have rare types of lung disease to help us understand how better to diagnose and treat these patients. Information will be collected from participants' doctors about how different aspects of their disease and treatment. This will be compared to information from other such patients from other hospitals around the United States. By gathering information on many such patients, we hope to develop best practices for such patients. These may lead to new research studies, which we can invite participants in this study to consider as well.
Study purpose is to determine proportion of pregnant women who have no symptoms but are COVID-19 positive
The SELIGO study assesses perceptions of HIV treatment - including long acting injectable antiretroviral therapy (LAI ART) - among people living with HIV infection (PLWH) and HIV healthcare providers (HCPs) to develop strategies and tools to facilitate shared decision-making by patients and provider considering HIV therapy options.
The purpose of this study is to find better ways to diagnose, treat and prevent cancers in children, adolescents and young adults. Gathering health information over time from younger patients with cancer may help doctors find better methods of treatment and on-going care.
We are interested in learning more about what concerns and challenges are being experienced by people with eating disorders during the COVID19 pandemic. We hope that answers to our survey questions will help provide information that can benefit people with eating disorders and the clinicians that provide treatment to them.
The purpose is to better understand the function of newly identified genes that when mutated cause the disease primary ciliary dyskinesia (PCD), or clinical disorders that share clinical features of PCD. PCD is a rare disease that is caused by defects in the structure or function of cilia that move mucus and inhaled foreign material, including bacteria and viruses, out of the airways. By understanding how the proteins encoded by these genes function and how this function is altered in disease, we may be able to improve the treatments available for PCD and other airway diseases.
The purpose of the study is to use a diagnostic evaluation and genetic testing to confirm a diagnosis of Primary Ciliary Dyskinesia (PCD) or Primary Immune Deficiencies (PID) in subjects who have presented with suppurative lung disease.
To evaluate the HomeLink program, which is a service designed to provide housing, case management and occupational therapy to individuals living with serious and persistent mental illnesses.
Develop a set of effective little cigar and cigarillo warning statements.