The purpose of this research study is to follow new parents with cystic fibrosis for 5 years to learn more about how their health changes when they become parents. The information we gather in this study will be used to inform future interventions to help people with CF successfully prepare for and transition into parenthood
We will interview researchers whose work involves the science of gene editing or policy implications of human gene editing. We will also conduct observations at conferences and other public meetings. The interviews and observations will document researchers' perspectives on the scientific prospects for applying human gene editing to the prevention of disease, enhancement concerns that might be generated, and views on the appropriate governance of human genome editing research.
This project explores the stories and narratives about how gardening and communing in a shared space (ex: community gardens) can enrich communal care, resistance, and joy.
I want to document a local language called Rusitène, spoken alongside Italian in Southern Italy but different from it. This language has under 2000 speakers and is at risk of disappearing, and with it, the associated culture and local knowledge.
Aim 1: Among key stakeholders in NC impacted by HIV molecular surveillance (HMS) activities, we aim to assess the ethical concerns surrounding the implementation of HMS and related pubic health services and research by: 1a) Characterizing stakeholders' awareness, experiences with, and sources of information AND 1b) Examining perceptions, including perceived risks and benefits and other ethical considerations, and the opportunities for enhancement of community engagement practices Aim 2: To develop a community-engaged partnership framework to promote effective communication and community participation regarding HMS, and related health services and research.
The purpose of this study is to gather information about how disruptions in school bus services affect children and families.
To understand the impact on schools of the new law.
The purpose of this study is to qualitatively examine how social movements and actors within social movement organizations interact with the press and media as they work to achieve their goals. This study seeks to further examine the relationship between left-leaning social movements in the U.S. South as alternative media outlets and newspapers decline and tension between social movements and actors like the state and elected officials intensify.
The study will evaluate staff experiences of transitioning participants from long term care facilities back into the community through the Money Follows the Person program. Challenges and best practices will be identified in order to inform program improvements.
Our goal is to examine differences in 250 AL communities' preparedness for and response to COVID-19 across 7 states, and how preparedness and response varies by a) AL characteristics (e.g. provision of memory care for residents with ADRD, chain affiliation), b) medical and mental health care provision (e.g., on-site medical care, medical directorship, proportion of residents with the same provider), and c) relates to resident outbreaks.