Parents are stressed out finding and managing health and nonmedical services for their transition aged children with intellectual and developmental disabilities. Building advocacy skills through peer-to-peer learning provides inspiration and life-long tools to address new questions and needs as they arise. Parents of youth aged 11-27 with IDD are invited to participate in this study. Parents will attend a group with other parents; the groups will meet 4 times, once a week for 1 hour.

Have you or your child have been recently diagnosed with cancer? If so, you or your child may be able to take part in a research study looking at how muscle and physical function (strength, mobility, endurance) change in children and young adults undergoing cancer treatment.

Do you have asymptomatic multiple myeloma, also known as smoldering multiple myeloma? You may be able to take part in a research study to help us learn more about the effectiveness of a drug called daratumumab in combination with lenalidomide and steroids.

Have you been diagnosed with high-risk non-muscle invasive bladder cancer which has not responded to initial treatment with Bacillus Calmette-Guerin (BCG)? If so, you may be able to take part in a research study evaluating the safety of adding the study drug called pembrolizumab to an existing treatment option for bladder cancer patients.

Do you have relapsed or refractory multiple myeloma? Have you received at least one type of treatment? If so, you may be able to take part in a research study looking at the the safety of giving an investigational medication to patients with multiple myeloma.

Have you been diagnosed with oropharyngeal (tonsil or tongue base) cancer. If so, you may be able to take part in a research study testing markers to determine who may be appropriate for less aggressive therapy and markers to determine if recurrent tumors can be detected earlier.

Have you been diagnosed with CD30 negative peripheral T-cell lymphoma? If so, you may be able to take part in a research study that will look at the safety of adding the new study drug duvelisib, or the new study drug CC-486, to the standard chemotherapy treatment for your disease. Please contact us with questions about eligibility, or if you wish to know more.

Do you currently have a cancerous tumor that has advanced or progressed? Are you currently not on any standard of care treatment options? If so, you may be able to take part in a research study to see if a new drug may be able to slow the growth of your cancer. Travel reimbursement and compensation provided.

Have you been diagnosed with an advanced cancer that has not responded to or has stopped responding to treatment? Have you had genetic testing done on your cancer? If so you may be able to take park in a research study to observe how certain cancer drugs target tumor DNA. Travel reimbursement provided.