Parents are stressed out finding and managing health and nonmedical services for their transition aged children with intellectual and developmental disabilities. Building advocacy skills through peer-to-peer learning provides inspiration and life-long tools to address new questions and needs as they arise. Parents of youth aged 11-27 with IDD are invited to participate in this study. Parents will attend a group with other parents; the groups will meet 4 times, once a week for 1 hour.
Do you have asymptomatic multiple myeloma, also known as smoldering multiple myeloma? You may be able to take part in a research study to help us learn more about the effectiveness of a drug called daratumumab in combination with lenalidomide and steroids.
Have you been diagnosed with high-risk non-muscle invasive bladder cancer which has not responded to initial treatment with Bacillus Calmette-Guerin (BCG)? If so, you may be able to take part in a research study evaluating the safety of adding the study drug called pembrolizumab to an existing treatment option for bladder cancer patients.
Have you been diagnosed with CD30 negative peripheral T-cell lymphoma? If so, you may be able to take part in a research study that will look at the safety of adding the new study drug duvelisib, or the new study drug CC-486, to the standard chemotherapy treatment for your disease. Please contact us with questions about eligibility, or if you wish to know more.
Have you been diagnosed with oropharyngeal (tonsil or tongue base) cancer. If so, you may be able to take part in a research study testing markers to determine who may be appropriate for less aggressive therapy and markers to determine if recurrent tumors can be detected earlier.
Do you have relapsed or refractory multiple myeloma? Have you received at least one type of treatment? If so, you may be able to take part in a research study looking at the the safety of giving an investigational medication to patients with multiple myeloma.
Do you currently have a cancerous tumor that has advanced or progressed? Are you currently not on any standard of care treatment options? If so, you may be able to take part in a research study to see if a new drug may be able to slow the growth of your cancer. Travel reimbursement and compensation provided.
Have you been diagnosed with an advanced cancer that has not responded to or has stopped responding to treatment? Have you had genetic testing done on your cancer? If so you may be able to take park in a research study to observe how certain cancer drugs target tumor DNA. Travel reimbursement provided.
Have you been diagnosed with cervical cancer? If so, you may be able to take part in a research study that aims to identify a new non-invasive biomarker (blood test) to 1) detect cervical cancer during screenings and 2) track response to treatment, detect early recurrence and guide personalized treatment decisions. In this study we will measure levels of Circulating Tumor Human Papilloma Virus DNA (ctHPVDNA) levels in the blood and urine of women with newly diagnosed cervical cancer prior to receiving any treatment, and then compare this to the levels in samples collected after treatment (surgery of chemoradiation).
Have you been diagnosed with Pancreatic Cancer. If so, you may be able to take part in a research study looking at the safety of giving a drug called CA-4948 Added to Standard Chemotherapy to Treat Metastatic or Unresectable Pancreatic Cancer
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