If you have been treated with ANCA vasculitis and you are now in remission, you may be able to participate in a study to test if a specific blood test can help your doctor decide if you need maintenance therapy.
The purpose of this study is to learn more about three kidney diseases called nephrotic syndrome: Focal Segmental Glomerulosclerosis (FSGS), Minimal Change Disease (MCD), and Membranous Nephropathy (MN). By collecting health information and laboratory samples from individuals who have these diseases and by making this information available to researchers, we hope to gain new knowledge about these diseases and to find better treatments for them.
To ascertain pediatric clinician preferences for risk stratification for pediatric kidney disease.
This study is looking at how work and family related responsibilities affect ability to teach for mothers who are also physicians.
The purpose of this study is to gauge interest in a peer support program to help individuals with chronic kidney disease who are pregnant or are contemplating pregnancy navigate decision-making and care management. This survey will help us understand patients' desires for such a program and ways it can be implemented to best serve their needs and preferences.
A multi-center open-label trial evaluating the efficacy and safety of daratumumab in treatment of patients with proliferative glomerulonephritis with monoclonal immunoglobulin deposits.
This study will compare 3 different ways to educate patients with advanced chronic kidney disease about hemodialysis vascular access.
Current dialysis vascular access patient education materials can be overwhelming, not written in plain language, and not have enough realistic information about the steps involved in getting a dialysis vascular access before starting hemodialysis. This study is being done to create and test a dialysis vascular access educational video for patients. Participants would take part in a one-time interview about their thoughts on dialysis vascular access education and their ideas for a vascular access video.
This study is comparing two approaches for monitoring and addressing symptoms among adult patients with kidney failure who are treated with hemodialysis. For the first approach patients use an electronic system twice a month to report their symptoms. The system sends alerts to their medical team at the dialysis clinic about the reported symptoms and gives suggestions about how to manage them. The system also provides reports that show patients and their medical team the reported symptoms over time. For the second approach patients complete a quality of life questionnaire that includes questions about symptoms once a year. The questionnaire does not have follow-up support like alerts, symptom management guidance, or reports. In addition, researchers will talk to patients, dialysis clinic personnel, and medical providers about their experiences using the electronic symptom monitoring system to learn about how to best use patient-reported outcome measures in dialysis care.
We have created this registry to provide an opportunity to study diagnostic capabilities, administration protocols and long-term effects of contrast-enhanced ultrasound (CEUS) of any organ.