This study will develop and test an online group course on self-compassion to help caregivers of children with physical disabilities manage stress and improve their well-being.
we want to learn more about seizure activity while a patient with epilepsy is not seizing or is at "rest" using data from resting state intracranial EEG (rs-iEEG) and resting state functional MRI (rs-fMRI).
The purpose of this study is to identify factors that can aid in the design and implementation of a strong safety culture among Hispanic construction workers. The Carolina Center for Healthy Work Design and Worker Well-Being will partner with a global engineering and construction management services company to assess the safety culture and sense of inclusion for the Hispanic workforce, which ultimately contributes to a safer environment and an industry with less worker injuries and fatalities.
This project will evaluate two training models of an evidence-based online dementia care training for direct care staff in assisted living. It will examine the extent to which each training is able to be implemented by assisted living communities, and to the extent the trainings improve staff knowledge and attitudes, change care practices, and improve the wellbeing of staff, residents, and residents' family members. Results will inform next steps in dementia care training for the assisted living and broader long-term care workforce.
Cervical cancer is a leading cause of cancer death among South African women. Despite a comprehensive national cancer control policy, cervical screening coverage is low and attrition during onward referrals for diagnostic confirmation and treatment remains common. Cervical screening and onward linkage to care are especially important for HIV-infected women due to their high risk of HPV infection and rapid progression from precancer to invasive cervical cancer. Our team seeks to develop a Digital health intervention, to improve engagement of women with precancer in the cervical cancer care continuum.
The purpose of our study will be to evaluate the effectiveness of a series of examination workshops (knee, shoulder, hip) delivered during an academic half-day for first year residents.
This research is to understand palliative care needs and disparities in the intensive care unit. The study will involve a survey and assess palliative care needs and quality, with a particular focus on Hispanic and Latino patients and families. This will help identify ways to better provide care.
Mucopolysaccharidosis II (MPS II) or Hunter syndrome, is a rare genetic disorder caused by the decreased levels of a specific enzyme, iduoronate-2-sulfatase. Lack of this enzyme causes buildup of large sugar molecules called glycosaminoglycans (GAGs). The build up of GAGs causes significant damage to the body and brain. This study will evaluate the long-term use of DNL310, an enzyme replacement therapy, to provide the missing enzyme to the body and to break down the stored GAGs. DNL310 uses specific technology to cross the blood brain barrier so that the enzyme can get into the brain. DNL310 is expected to help both the cognitive (brain) and body effects of MPS II. This is an extension study to two current DNL310 clinical trials; only participants currently enrolled in these trials will have the opportunity to participate in this long-term study.
The purpose of this listening session is to understand participating organizations' experiences with the ENRICH Carolinas program, including insights about barriers, facilitators, challenges to implementation, and lessons-learned related to implementation of Step 3 of the Baby Friendly Hospital Initiative (BFHI) and/or use of the Ready, Set, Baby resources.
To ascertain pediatric clinician preferences for risk stratification for pediatric kidney disease.