This study is an access and distribution protocol for unlicensed cryopreserved cord blood units (CBUs) in pediatric and adult patients with hematologic malignancies and other indications. This protocol will allow access to cord blood units that are unlicensed.
The main purpose of this study is to determine how much MRTX849 can safely be administered to people. This will include looking at what side effects occur and how often they occur.
I am providing the first description of a language related to Italian from the south of Italy. This language is in danger of disappearing.
The purpose of this study is to describe how meals were served through federal child nutrition programs during the COVID-19 school closures. This study involves interviews with child nutrition directors who will also have the opportunity to submit video diaries about their programs. A goal of this research is to provide information that can inform future improvements to policy and practice related to federal child nutrition programs and identify innovative approaches to running these programs that occurred during the crisis but can be sustained when normalcy resumes.
The primary purpose of this project is to support local Triple P counties and/or agencies to monitor and improve Triple P implementation by increasing the availability of quality outcome monitoring resources for county and/or agency partners. In addition, the project team is interested in using the data for future research purposes.
This project is about the role of science and data in ocean management. The Big Data revolution is increasing knowledge about oceans and human impacts on them. This knowledge both fuels and is fueled by interest in development and conservation opportunities in oceans. Ocean data science initiatives (ODSIs) use new data and technologies to support work by government and non-government organizations to extend, reform and create new policies for ocean management. This project examines the role of ODSIs in improved ocean management, at global and regional scales, focusing on two key questions: 1) What kinds of new policies are possible based on knowledge generated by ODSIs? 3) How can ODSIs inform policies for ocean management in ways that that support environmental sustainability and human well-being? The project brings together an interdisciplinary team of human geographers, marine ecologists, geospatial data scientists and information scientists to conduct the research. It also engages
The purpose of the study is to understand parents' care coordination needs for raising a child with Down syndrome. This information will be used to develop an mHealth application to help meet those needs.
This is a 5-year, longitudinal, observational study of adult and pediatric patients (age 2 and above) undergoing IBD therapy designed to specifically address important clinical questions that remain incompletely answered from registration trials. In addition to the study database, a biospecimen repository will also be included so that translational studies of viral resistance, genomics, and biomarkers of response may be performed. Also, the right to collect retrospective data on these IBD patients will be reserved.
There are two main aims of this study. The first aim is to describe rates of jaw pain symptoms in patients who have root canal treatment. The second aim is to test whether a short questionnaire can identify patients with jaw pain.
To evaluate medical students' levels of burnout and empathy using validated survey tools at the beginning and end of their third year surgery clerkship. Burnout within the medical community is a known problem and there is data demonstrating it begins in training. We want to evaluate if participation within the surgery clerkship contributes to burnout and measure how empathy relates to these symptoms.