The purpose of this study is to validate a new voice-enabled tablet to ensure it is an accurate and acceptable way to administer PROs questionnaires in Malawi. This voice-enabled tablet was developed specifically for patient populations who are unable to comfortably read and write, so that they can have equal access to participating in direct self-reporting their own PROs Questionaries without needing and interviewer to assist them. Once validated in the first 50 participants, then we will continue to enroll 500 participants who will take the PROMIS-25 and/or PRO-CTCAE Questionnaires at various time points throughout their treatment. This will allow you to directly self-complete the PRO surveys and give you a voice so that your struggles, quality of life, and symptoms can be more accurately and comprehensively communicated to the medical care team. We hope that through administering these PROs questionnaires, it will also improve the overall care, management of
We are interviewing businesses and local law enforcement to learn about practices around checking customer identification for alcohol sales. Additionally, we are providing age verification technology to businesses to prevent the sale of alcohol to underage customers.
There is limited information among young people about a condition called Long COVID, where individuals have or are experiencing a symptom or symptoms of COVID-19 for 1 month or longer. We are conducting a one-time survey to gain data on this issue among undergraduate and graduate/professional students ages 18-29 at UNC CH.
We hope to collect data on the pregnancy course and neonatal outcome of mothers whose infants have been diagnosed with gastroschisis.
Recording brain signals while people learn changing information to see how brain signals differ when people notice that information has changed compared to when people do not notice that information has changed. This will help us understand how memory works in the brain.
All existing studies estimate the health effects of disability insurance based on reduced form models. This paper fills the gap in the literature by developing a model that allows the estimation of the Social Security Disability Insurance effects on health in a structural way. The structural model enables me to analyze counterfactual scenarios. In particular, I concentrate on the modification of the SSDI program that permits partial benefits for the partially disabled.
To determine in a randomized manner whether the addition of levocarnitine prophylaxis to asparaginase-containing regimens will decrease the incidence of conjugated hyperbilirubinemia (>3 mg/dL) during ALL induction therapy in adolescents and young adults (AYAs, age 15-39 years).
The purpose of this study is to understand the relationship between binge drinking in adolescence and behavior in adulthood, as well as the relationship between sleep and reactions to alcohol.
There are no current, approved therapies to treat children ages 2 to 5 with pediatric functional constipation (PFC). Therefore, we aim to evaluate whether linaclotide can be an effective and safe therapy for children with functional constipation (FC) in this age group.
To learn more about a condition called microscopic colitis which can cause chronic diarrhea