This project will focus on identifying and addressing socio-economic barriers to healthcare (e.g., education, transportation/access) for patients with Systemic Lupus Erythematosus (SLE) and Lupus Nephritis (LN). This pilot program aims to expand supportive services and education to mitigate healthcare barriers, by: 1) enhancing access to tangible transportation support systems to improve healthcare access; and 2) utilizing Pharmacist Counseling and Patient Educational Materials to increase awareness and knowledge of the importance of early diagnosis and treatment, medication adherence, and routine screenings (e.g., urine protein creatinine ratio and urinalysis) for improved health outcomes.
The purpose of this study is to develop a useful computer model that can be used by doctors to diagnose and determine the best medical treatment plan for children diagnosed or suspected to have subglottic stenosis (SGS). SGS can be either congenital (present at birth) or acquired (the result of trauma or infection). Premature infants who require long-term breathing support are at increased risk of developing SGS.
The purpose of this study is to determine how cognition impacts motor function. We believe that understanding how the cognitive and motor system interact is important, especially for people recovering from stroke where performing movement is often difficult.
we propose the creation of a prospective multi-center registry of patients with IBD and EIM, initially focusing on peripheral arthritis, the most common and understudied EIM, to better understand clinical course and management.
Re-enroll former SEED families to collect updated health and development information about their children who previously participated in SEED as preschoolers.
The TIMELY impact evaluation is a tracking study to evaluate the extent to which patients with lupus from North Carolina who are under the care of TIMELY-trained providers (rheumatologists, primary care providers, nephrologists, dermatologists) or have connected with local Community Health Workers (CHWs) have increased intentions and willingness to participate in lupus clinical trials and referrals, enrollment, and retention in lupus clinical trials.
This study focuses on human's deviation from information saturation with their personal satisfying strategy, aka, individual information satiety. This helps us to understand how and why humans decide what is enough for particular tasks, and inform us with better design guidelines for information systems.
The purpose of this study is to understand how individuals develop personalized approaches to leadership. In order to understand how this occurs, we will be interviewing leaders multiple times over the course of a year to understand their unique approach to leadership and how it evolved.
The rationale of this phase 3 study is to explore whether avacopan combined with a rituximab or cyclophosphamide-containing regimen is safe and effective in inducing and maintaining remission in pediatric subjects with active ANCA-associated vasculitis (AAV).
To collect data (mid and long-term) for certain FDA approved endovascular devices.