Are you an adult with Hereditary Hemorrhageic Telangiectasia (HHT) ? Information about people living with this rare genetic disease HHT is urgently needed. The purpose of this study is to collect a bank of information about people living with HHT to better understand HHT, the symptoms and complications it causes and how the disease impacts people's lives.
Does your child or teen have a history of wheezing or asthma? Your child may be eligible to participate in a registry that will allow us to understand how wheezing and asthma change over time in kids and teens. Compensation provided for in-person study visits. We will also be enrolling some children without a history of wheezing or asthma to serve as a comparison group.
Pelvic exams have been a regular part of yearly check-ups for a long time. In this study, we want to better understand how patients think about pelvic exams in general and as related to birth control.
In this study, we want to learn more about mental health stigma and resource utilization. We also want to learn how stigma affects attitdues towards mental health and mental health resources in collegiate athletes.
This project seeks to adapt and test the existing Tough Talks app to address COVID vaccine hesitancy among African American young adults (AA-YA) aged 18-29.
The purpose of this study is to understand how pain and weakness due to knee osteoarthritis affect inflammation and quadriceps muscle function during walking.
Are you a patient or survivor of a pediatric or young adult cancer? You may be able to take part in this registry to help us learn about long-term and treatment-related adverse outcomes.
The purpose of this research study is to better understand, from the perspective of Black patients, whether telemedicine visits make prostate cancer decision making easier or harder. The COVID-19 pandemic made it more difficult for patients to see their doctors, but care could continue by having appointments via a computer or phone, which many prostate cancer doctors used. Whether in person or remote, successfully choosing a treatment for prostate cancer often uses shared decision making (SDM), the process where doctors and patients work together to make decisions that match what matters to patients, but it is unknown whether virtual appointments make discussions better or worse. Other studies have shown that Black patients may be less satisfied with their treatment choices than non-Black patients. Therefore, it is important that we understand how to improve the same quality of care for Black patients.
In this study, we want to understand whether we can use non-invasive brain stimulation to treat non-moto symptoms like autonomic nervous system dysfunction and depression in people with Parkinson's disease.
In this study, we want to learn if wearable technology can be used to assess interactions between grandparents and grandchildren. We want to find out if these interactions affect markers associated with grandparent wellbeing. This study will help us to develop new methods that will let us better understand the impact of grandparenting on the health of grandparents.