To compare the prevalence, severity, and timing of chronic health conditions (CHC) in a cohort of patients with DS-AL (Down Syndrome Acute Leukemia) with age-comparable DS individuals that have no cancer history. Our secondary objectives will compare NP (Neuro-Psychological) and health-related quality of life outcomes in survivors of DS-AL compared with age-comparable DS individuals with no cancer history, and will identify risk determinants of CHC and NP late effects among survivors of DS-AL.
This study aims to understand how adults who have completed a thru-hike of the Appalachian Trail planned for their thru-hike and adjusted their plans in response to different situations on the trail.
The purpose of this study is to meet with elementary school homeroom teachers and middle school social science teachers within the district of Salihli-Turkey and document their knowledge and perceptions regarding the archaeological site of Sardis, archaeology, and archaeologists. The long-term goal of this research is to utilize the data collected to establish a foundation for the development of teacher training programs on archaeological site of Sardis, break teachers' prejudices against the discipline of archaeology, and foster a sense of trust towards international archaeologists actively excavating in this area.
To evaluate the feasibility and acceptability of a novel psychosocial intervention for parents with advanced cancer and their co-parents.
This study will ask parents who homeschool their high school-age children to provide information about how these students learn information literacy skills (specifically, how to find and evaluate sources). It seeks to better understand common information literacy practices and compare how information literacy is taught among different groups of homeschoolers in order to strengthen our understanding of how high schoolers encounter this important skill.
The purpose for this research study is to learn more about PCD through the creation of a secure electronic clinical registry. Through this registry, researchers will be able to follow people living with PCD over time to learn more about how PCD affects people's health and the treatment people take.
The purpose of this study is to follow patients who were diagnosed with HIV-1 infection during this acute infection stage to look at clinical and laboratory markers of HIV infection, over time. Individuals joining this study may or may not be on treatment for their HIV. No treatment is provided in this study. Participants may be asked to provide blood samples on this study.
The purpose of this study is to implant abnormal human parathyroid glands into mice to be used to test agents that might allow better imaging of parathyroid glands. This may improve the surgery that is sometimes required for abnormal parathyroid glands.
To determine the needs of caregivers of older adults (65+ years) in rural versus urban areas, from the perspective of the social worker. This information will be used to identify and address healthcare disparities of older adults and their caregivers.
To study the how well Pembrolizumab works on advanced tumors