The purpose of this study is to collect a bank of information about people living with HHT to better understand HHT, the symptoms and complications it causes and how the disease impacts people's lives.
Does your child or teen have a history of wheezing or asthma? Your child may be eligible to participate in a registry that will allow us to understand how wheezing and asthma change over time in kids and teens. Compensation provided for in-person study visits. We will also be enrolling some children without a history of wheezing or asthma to serve as a comparison group.
Pelvic exams have been a regular part of yearly check-ups for a long time. In this study, we want to better understand how patients think about pelvic exams in general and as related to birth control.
In this study, we want to learn more about mental health stigma and resource utilization. We also want to learn how stigma affects attitdues towards mental health and mental health resources in collegiate athletes.
This project seeks to adapt and test the existing Tough Talks app to address COVID vaccine hesitancy among African American young adults (AA-YA) aged 18-29.
The purpose of this study is to understand how pain and weakness due to knee osteoarthritis affect inflammation and quadriceps muscle function during walking.
This is a registry of childhood, adolescent, and young adult patients with cancer. This registry is for anyone diagnosed with cancer before the age of 40 years to establish a UNC-based resource for the prospective study of the long-term, treatment-related effects, particularly the early aging effects, of cancer and its treatment.
The purpose of this research study is to better understand, from the perspective of Black patients, whether telemedicine visits make prostate cancer decision making easier or harder. The COVID-19 pandemic made it more difficult for patients to see their doctors, but care could continue by having appointments via a computer or phone, which many prostate cancer doctors used. Whether in person or remote, successfully choosing a treatment for prostate cancer often uses shared decision making (SDM), the process where doctors and patients work together to make decisions that match what matters to patients, but it is unknown whether virtual appointments make discussions better or worse. Other studies have shown that Black patients may be less satisfied with their treatment choices than non-Black patients. Therefore, it is important that we understand how to improve the same quality of care for Black patients.
Are you a parent or guardian of an infant with Angelman Syndrome or Fragile X Syndrome? If so, please consider joining our non-invasive brain imaging study, which will help to advance our understanding of the earliest brain and behavior signs of these conditions. A copy of the MRI scan and a summary of behavioral assessments will be shared with the family. Compensation for participation will be provided, and all travel expenses will be covered.
Para nuestro proyecto, estamos estudiando una evaluación del desarrollo infantil que pueda hacerse a distancia desde la casa de la familia. Esta se llama "Evaluación del neurodesarrollo con ayuda de los padres" o "PANDABox", según su acrónimo. PANDABox se ha usado con familias que hablan inglés, pero no se había traducido al español hasta ahora. De modo que hay dos razones por las que estamos haciendo nuestro estudio: primero, traducir la evaluación al español; y segundo, probar la evaluación con familias latinas con bebés que podrían beneficiarse de una evaluación del desarrollo. Después de probar la evaluación, les preguntaremos a las familias cómo fueron sus experiencias y si tienen alguna sugerencia para mejorarla. En general, esperamos mejorar la evaluación PANDABox en cuanto al idioma y la cultura de las familias que hablan español.