This is a registry of childhood, adolescent, and young adult patients with cancer. This registry is for anyone diagnosed with cancer before the age of 40 years to establish a UNC-based resource for the prospective study of the long-term, treatment-related effects, particularly the early aging effects, of cancer and its treatment.
The purpose of this research study is to better understand, from the perspective of Black patients, whether telemedicine visits make prostate cancer decision making easier or harder. The COVID-19 pandemic made it more difficult for patients to see their doctors, but care could continue by having appointments via a computer or phone, which many prostate cancer doctors used. Whether in person or remote, successfully choosing a treatment for prostate cancer often uses shared decision making (SDM), the process where doctors and patients work together to make decisions that match what matters to patients, but it is unknown whether virtual appointments make discussions better or worse. Other studies have shown that Black patients may be less satisfied with their treatment choices than non-Black patients. Therefore, it is important that we understand how to improve the same quality of care for Black patients.
Are you a parent or guardian of an infant with Angelman Syndrome or Fragile X Syndrome? If so, please consider joining our non-invasive brain imaging study, which will help to advance our understanding of the earliest brain and behavior signs of these conditions. A copy of the MRI scan and a summary of behavioral assessments will be shared with the family. Compensation for participation will be provided, and all travel expenses will be covered.
Para nuestro proyecto, estamos estudiando una evaluación del desarrollo infantil que pueda hacerse a distancia desde la casa de la familia. Esta se llama "Evaluación del neurodesarrollo con ayuda de los padres" o "PANDABox", según su acrónimo. PANDABox se ha usado con familias que hablan inglés, pero no se había traducido al español hasta ahora. De modo que hay dos razones por las que estamos haciendo nuestro estudio: primero, traducir la evaluación al español; y segundo, probar la evaluación con familias latinas con bebés que podrían beneficiarse de una evaluación del desarrollo. Después de probar la evaluación, les preguntaremos a las familias cómo fueron sus experiencias y si tienen alguna sugerencia para mejorarla. En general, esperamos mejorar la evaluación PANDABox en cuanto al idioma y la cultura de las familias que hablan español.
In this study, we want to learn if wearable technology can be used to assess interactions between grandparents and grandchildren. We want to find out if these interactions affect markers associated with grandparent wellbeing. This study will help us to develop new methods that will let us better understand the impact of grandparenting on the health of grandparents.
The purpose of this research project is to learn about whether a personalized eating plan designed specifically for teens with type 1 diabetes will help them better manage their blood sugar. This plan will be individualized to teens' unique preferences and daily routines. A dietician will provide ongoing support to the teen and family throughout the project
Individuals with a history of anterior cruciate ligament (ACL) injury and have had an ACL reconstruction (ACLR) are at a greater risk for developing osteoarthritis. The greater risk for developing osteoarthritis is likely caused by too little force or physical activity applied to the knee during weightbearing tasks such as walking. To reduce this decrease in forces during walking following an ACLR, we must first develop effective treatments that can train a person to walk in a way that reduces their risk of developing osteoarthritis. The purpose of this research study is to determine the feasibility and the initial effects of a 6-week training program designed to improve walking mechanics of individuals with an ACL reconstruction.
The objective of the study is to establish a prospective disease registry for chronic recurrent multifocal osteomyelitis (CRMO)/chronic nonbacterial osteomyelitis (CNO) in order to investigate the natural history of the disease and the responses of patients to different clinical managements over 5 years.
We are interested in improving the intersectional experiences of women of color in science, technology, engineering, and mathematics (STEM) at UNC. We are doing this study to understand the factors that hinder and support STEM persistence among graduate and undergraduate women of color at UNC.
Do you ever wonder if there is a connection between oral and gut health and food allergies? Well, so do we! We are trying to enroll pediatric participants in our registry study to determine what the link is and use it to possibly help treat patients in the future.