Parents are stressed out finding and managing health and nonmedical services for their transition aged children with intellectual and developmental disabilities. Building advocacy skills through peer-to-peer learning provides inspiration and life-long tools to address new questions and needs as they arise. Parents of youth aged 11-27 with IDD are invited to participate in this study. Parents will attend a group with other parents; the groups will meet 4 times, once a week for 1 hour.
Are you a parent or guardian of a child with or without ASD or ADHD? We are interested in your how your child handles stress and uncertain situations. We are asking parents/guardians to complete a short online survey where will we ask questions about anxiety and inflexibility. Compensation provided.
Does your child have hearing loss in one ear, or single-sided deafness? If they are under the age of 3, they may be able to receive a cochlear implant as part of a research study to find out if early implantation helps children with single-sided deafness. If they are five, they may be able to help us study differences between children who receive a cochlear implant when they are little, children who do not receive a cochlear implant, and those with typical hearing.
Have you had or are planning to have ACL reconstruction? You may be able to take part in a research study to help us learn more about the outcomes following surgery after a lower limb injury. We are also looking for healthy volunteers between the ages of 12-64 to take part. We will provide you with a report of your results after testing!
Have you or your child been diagnosed with type 1 diabetes during the past 12 months? Are you interested in helping researchers learn more about how to delay or prevent type 1 diabetes or how to treat type 1 diabetes? Join a registry to be notified of future opportunities to participate in type 1 diabetes research!
Does your child need a dental exam and cleaning? Your child may be able to take part in a research study where we explore ways of calming and reducing discomfort in children during dental exams and cleanings. Compensation will be provided.
Does your teen get their menstrual period regularly? Do they experience depression, self-injury, or suicide? If your child is between the ages of 14 and 19, they may be able to participate in this study! We hope to learn more about how teens respond to stress, especially when going through hormonal changes across the menstrual cycle, and how these will affect their thoughts and feelings. Your child will be compensated for their participation.
Does your child have frequently relapsing or steroid dependent nephrotic syndrome? This study is testing a medicine called obinutuzumab, and comparing it with another one, mycophenolate mofetil (MMF), to see which works better for children with nephrotic syndrome.
Have you been infected with COVID-19? Are you a solid organ transplant recipient? Have you or your child received a COVID-19 vaccine or are planning to receive one? If so, you may be eligible to participate in a research study that will assess your immune response to COVID-19 infection or vaccination over a 5 year period. We are looking for children and adults aged 7-95 years, and plan to collect blood every 2-6 months over the study period. (Compensation provided for the first year).
Do you have a newborn baby? Do you also live in Lenoir, Pitt, Craven or Wayne County, NC? If so, you may be able to take part in a research study to find out if drinking bottled water with fluoride can help prevent cavities in children. Compensation provided.