Help us improve resources for patients with rheumatic conditions! This is a brief, anonymous survey aimed to gather information about what additional resources you'd like to learn about from your rheumatology care team. Learning about your interest and priorities will inform future development of programs, resources, and tools to promote health.
Would you like to learn more about your body composition and resting metabolic rate? If you identify as Asian and are between 18-35 years old, you may be eligible to participate in a research study evaluating body composition and metabolic health in multiple Asian ethnicities.
Do you have a cough that hasn't gone away for more than 8 weeks? Does your cough bother you or make it hard to do normal activities? If your cough continues and you feel it is not well managed, you may be able to participate in a research study to find out how chronic cough is treated and how it affects daily life and other health conditions. Compensation provided.
Do you have plaque type psoriasis? You may be able to participate in a research study to find out if an investigational medication (zasocitinib) works better than an already FDA approved medication for psoriasis (deucravacitinib).
Have you diagnosed with lymph node positive early breast cancer, have received surgery, and have not received any systemic or radiation treatment prior to surgery? If so, you may be able to take part in this clinical trial which seeks to improve the treatment of early-stage breast cancer by examining ctDNA, a biomarker found in the blood that may indicate the presence of disease. This study aims to determine if ctDNA can help doctors personalize therapies leading to more effective treatment plans.
Do you have acid reflux, GERD, or Barrett's Esophagus? Are you having standard of care endoscopies performed? You may be able to participate in a research study testing for Barrett's Esophagus and esophageal cancer. Compensation provided.
Do you or your child have alopecia areata? Would you be interested in hearing more about a clinical study on alopecia areata? If so, you may be able to participate in a research study to find out how effective and safe the study medication ritlecitinib is in patients with alopecia areata.
Most patients with generalized Myasthenia Gravis need treatments that carry substantial risk of side effects and toxicity, Descartes-08 is a cell therapy is a RNA based CAR-T that causes direct killing of target cells without serious generalized toxicities.
Do you have chronic limb-threatening ischemia? This might cause you pain, slow-healing wounds, or make it hard to decide about surgeries and treatments for your leg or foot. We want to hear from you. What has getting the care you need been like? Have you ever felt unsure about your treatment options or needed more support? Sharing your story can help us make care better for others with the same condition. It might help doctors to explain things more clearly, find better ways to manage pain, or support people who worry about their independence. We will talk with you two times-now and again in six months-to hear about your experiences. Your story can help make care easier and better for people in the future.
Have you had a stillborn baby or delivered a baby before 35 weeks? You might be able to join the ADEPT study. These situations can make your current pregnancy higher risk. Doctors often suggest taking aspirin to help. This study wants to find out if taking a higher dose of aspirin works better to lower the risk of having another preterm delivery or stillborn baby.